Sunday, November 03, 2013

Dear Corry - mom of a PWN (for Julie Flygare's Dear Diagnosis Blogathon)

You are a mom of two grown children, a son in college and a daughter recently diagnosed with Narcolepsy with Cataplexy.  Your job as a mom doesn't end when your nest is empty, you still worry and wonder and pray for their safety and well being but when you find out your grown daughter has this disability you realize your role as a mom is still very important.  You have connected with Lindsey via cellphone almost daily since she left home and went off to college to make sure she got up in the morning for class or for listened when she talked about the struggles with sleep and being tired all the time, suffering with the frustration of not having energy to do what she'd like, feeling nauseous in the mornings because of her delayed sleep phase condition, hearing the sadness when she lost a job because she didn't get up and to work on time, and you helped her get to the point of a diagnosis by making sure she saw the right doctors and got the sleep test and answers needed.

Of course you do all that because you are "the mom" and you would do anything to help your children succeed in life, to have the best quality of life possible and if that means sacrificing for them you will do it without giving it a second thought.  Having this diagnosis means you have answers and a reason for all the struggles.  It means you now can begin to understand a lot of the aspects of this diagnosis and the side effects, the characteristics that are part of the N/C package and not just a personality thing...and with understanding comes acceptance and change, possible solutions and answers but most of all awareness and continued unconditional love!  Now that you know can move forward together.

You now realize in retrospect that this problem likely started in junior high and that she was always difficult to wake up but you never thought it was a bigger problem than her being a sleepy teenager who's was also just a nightowl like you! You will have thoughts about what caused your child to develop this condition, is it something you did or could have prevented, was it a vaccine you made your daughter get, foods you ate or some other environmental cause, genes you passed down, either way guilt won't help or make the N go away but perhaps someday scientists will find some answers that may help prevent others from going through this. You will ask God why but understand that He knows but we may not ever understand why some people get sick and some don't.  

You will continue to support Lindsey any way you can because that's what you do, to the best of your ability, you'll be there when she needs advice or a ride to the sleep clinic, you will raise awareness for this cause because it is not well known and because PWN's look "normal" people don't recognize it as a disability or the serious condition that it is. You will help her advocate so that she succeeds in all she does because you know she is strong and won't let this keep her down.  She will find a career that she loves and excels at and can use her vast talents to their fullest and you will continue to pray to that end.  Narcolepsy is not who she is it is just what she has! 

Thursday, April 19, 2012

Its about time

I've been on hiatus far too long in regards to my papercrafting endeavors and am anxious to get back at it....I've done a little cardmaking and a few layouts over the past year but not much.......EXCEPT for my smashbooking which is a fun journalling/diary/scrapbooking thing that is fairly popular at the moment.  It has been great because its simple and quick and you can use up scraps of this n that... I add pictures of course and ticket stubs/receipts all those fun things you collect and its been fun doing this with Lindsey.  

So I signed up to sell CTMH again and am thinking with online ordering this might be more worthwhile....time will tell....and I plan to use the products in my monthly card classes.  

Tuesday, July 26, 2011


life's all about challenges, some good some not so good but i personally LOVE scrap related challenges because they give me a starting point and push me to maybe try something I wouldn't normally or just get me going after a lul in mojo so here are a couple layouts I created for Scrapshotz challenges, Summer Sketchathon and in your Community.

Wednesday, July 20, 2011

Wrap it Up (ATU35)

managed to fit in some scrapping and cardmaking between mini "staycations" , work and the rainy days we've had sure make it easy to stay inside and create!!

here is my entry for challenge ATU35 at All Things Unity!!  found this great colorful jute at the $ store and had to pick up a couple colors!!

Saturday, July 09, 2011

Summer Fun with Unity

I can hardly wait for my June KOM to come in the mail, being delayed from the postal strike and then shortly after should be the July KOM so I'll have lots of  new images to play with over the summer!!! yay....and here is one of my fave images from a previous kit, the cute sun!!!  for the summer fun CHallenge!!!

Lets fly Away

I'd like to fly away from home right now with all the rain we've been having it doesn't feel like summer at all but what's one to do but complain..........and be creative inside :)  the All things Unity challenge to use Unity butterflies is great fun since there are so many to choose from....... here are two entries

Friday, May 13, 2011

Friends with Flair

a couple more cards made with the fantastic April Unity KOM!!! love the stamps in this.

Saturday, May 07, 2011

All things UNITY

in honor national scrapbook day there has been lots of unity fun going on and I had a fun day creating layouts and cards for the various challenges.  One with Flower soft for the  All Things unity challenge to "felt it up"....and a wonderful delicate stamp from the April Unity KOM, and a little 3" square Trifecta card for todays special challenge, 3", 3 embellies and Birthday........also using stamps from the April KOM.